Press Statement

UNAIDS supports a temporary WTO waiver from certain obligations of the TRIPS Agreement in relation to the prevention, containment and treatment of COVID-19

GENEVA, 15 October 2020—Today, the World Trade Organization’s Trade-Related Aspects of Intellectual Property Rights (TRIPS) Council meets to consider a proposal presented by the Governments of South Africa and India for a temporary waiver of certain TRIPS obligations in order to facilitate an appropriate response to COVID-19. The aim is to create certainty and clarity, guaranteeing freedom to operate, innovate, procure and scale up manufacturing capacities in essential health technologies at the required scale. The waiver would reduce transaction costs and eliminate key barriers across the research and development cycle and the supply chain for the access and delivery of health technologies to prevent, diagnose and treat COVID-19.

“UNAIDS fully supports this proposal, which reflects the urgency and global health emergency that COVID-19 represents,” said Winnie Byanyima, Executive Director of UNAIDS. “Its adoption will enable countries to work together to establish national and multilateral strategies to promote innovation of, and access to, medicines, diagnostics, vaccines and other health technologies.”

Global solidarity and shared responsibility have been recognized as fundamental principles that guide the United Nations system response. There is a growing consensus that universal access to health care, and to COVID-19 health technologies, must be a global public good.

In response to the colliding pandemics of COVID-19 and HIV, UNAIDS has adopted a multisectoral and people-centred approach in order to protect the gains for people living with and affected by HIV and to drive progress towards the Sustainable Development Goals. The AIDS community knows that in order to tackle public health threats a focus on inequality is essential, including inequalities in access to solutions, whether vaccines, diagnostics or therapeutics.

“We cannot repeat the painful lessons from the early years of the AIDS response, when people in wealthier countries got back to health, while millions of people in developing countries were left behind,” Ms Byanyima added. “If we continue with business as usual we will fail in delivering fair access to COVID-19 treatments for all those in need. Yet fair access is the human right of everyone, no matter the colour of their skin, the money in their pocket or the country they live in.”

A range of solutions will be needed in order to ensure equal access and to unlock supply. UNAIDS calls for support for the multilateral solutions that are on the table and for collaboration through fostering the transfer of technology and mass-producing health products, using a public health lens.

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

Contact

UNAIDS Media
tel. +41 22 791 4237
communications@unaids.org

Feature Story

COVID-19 impacting HIV testing in most countries

13 October 2020

Monthly data routinely reported to UNAIDS on disruptions to HIV testing and treatment services have found significant decreases in HIV testing services in nearly all countries with available data.

Since the start of the COVID-19 pandemic, UNAIDS, the World Health Organization and the United Nations Children's Fund have collected data from countries through an online platform (https://hivservicestracking.unaids.org) to identify national, regional and global disruptions of routine HIV services caused by COVID-19.

Fifty-six countries reported at least one month of HIV testing data to the platform between January and July 2020, with 17 supplying enough data to calculate trends over time. To measure the impact of COVID-19 on HIV testing services, a ratio was calculated relative to January—for example, if the number of tests in April was the same as in January, the ratio is 1; if there was a decline, the ratio is less than 1.

Large, sustained decreases in HIV testing services have been seen across all countries except Rwanda, with reduced services reported for most countries starting in April. Five countries, Myanmar, Mozambique, Madagascar, Rwanda and Armenia, have rebounded to pre-COVID-19 testing levels, while in other countries, such as Guyana and Peru, testing remains low.

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Addressing stigma and discrimination in the COVID-19 response — Applying the evidence of what works from HIV-related stigma and discrimination in six settings to the COVID-19 response

08 October 2020

The UNAIDS Secretariat, as co-convener of the Global Partnership for Action to Eliminate all Forms of HIV-related Stigma and Discrimination (Global Partnership), was tasked to develop this brief, based on consultations with its Technical Working Group (TWG), to provide evidence-informed guidance to countries on the intersection of stigma related to HIV and COVID-19 in national responses. UNAIDS thanks co-conveners and TWG members for participating in consultations, contributing their time and providing expert recommendations. This document is also available in Portuguese

Press Release

UNAIDS issues guidance on reducing stigma and discrimination during COVID-19 responses

GENEVA, 8 October 2020—Drawing on 40 years of experience from the AIDS response, UNAIDS is issuing new guidance on how to reduce stigma and discrimination in the context of COVID-19. The guidance is based on the latest evidence on what works to reduce HIV-related stigma and discrimination and applies it to COVID-19.

Since the start of the COVID-19 pandemic, numerous forms of stigma and discrimination have been reported, including xenophobia directed at people thought to be responsible for bringing COVID-19 into countries, attacks on health-care workers and verbal and physical abuse towards people who have recovered from COVID-19. Attacks on populations facing pre-existing stigma and discrimination, including people living with HIV, people from gender and sexual minorities, sex workers and migrants, have also been reported.

“In the wake of the fear and uncertainty that emerge during a pandemic, stigma and discrimination quickly follows,” said Winnie Byanyima, Executive Director of UNAIDS. “Stigma and discrimination is counterproductive. It exposes people to violence, harassment and isolation, stops people from accessing health services and prevents public health measures from effectively controlling pandemics.”

Addressing stigma and discrimination in the COVID-19 response provides countries with rights-based guidance through education, support, referrals and other interventions. It offers solutions across six specific areas: community, workplace, education, health care, justice and emergency/humanitarian settings.

As with the HIV epidemic, stigma and discrimination can significantly undermine responses to COVID-19. People who have internalized stigma or anticipate stigmatizing attitudes are more likely to avoid health-care services and are less likely to get tested or admit to symptoms, ultimately sending the pandemic underground. 

“We know what works and what doesn’t, we know how to change beliefs and behaviour. For the last 30 years we have been successfully leading the HIV response, building valuable experience, knowledge and wisdom along the way,” said Alexandra Volgina, Programme Coordinator, Global Network of People Living with HIV. “We want to share these to change people’s lives for the better, and to make our distinctive contribution to overcoming the COVID-19 pandemic.”

Some countries have used existing criminal laws or new, COVID-19-specific laws, to criminalize alleged exposure or transmission of COVID-19, putting more people in overcrowded prisons, detention centres and other closed settings where COVID-19 is easily transmitted.

“There is no greater manifestation of stigma than when it is enshrined in law. The use of the criminal law or other unjustified and disproportionate repressive measures in relation to COVID-19 is having a devastating impact on the most vulnerable in society, including many people living with HIV, exacerbating inequalities and perpetuating stigma,” said Edwin J. Bernard, Executive Director of the HIV Justice Network. “Measures that are respectful of human rights and empowering of communities will be infinitely more effective than punishment and imprisonment. We hope that these evidence-based recommendations on reducing COVID-related stigma and discrimination will make a difference to those who need it most.”

Reports in the early days of COVID-19 include discrimination related to gender and gender-based violence, targeting of key populations, including sex workers, and arrests and beatings of lesbian, gay, bisexual, transgender and intersex people. In April 2020, following a number of reports of violence and stigma and discrimination arising from the implementation of COVID-19 measures, UNAIDS began to identify the actions needed to respond, and in August UNAIDS issued a report, Rights in a pandemic, that highlights many of the human rights abuses that took place early in the response to COVID-19.

The new guidance, Addressing stigma and discrimination in the COVID-19 response: applying the evidence of what works from HIV-related stigma and discrimination in six settings to the COVID-19 response, is part of efforts by UNAIDS and the Global Partnership to Eliminate All Forms of HIV-Related Stigma and Discrimination to accelerate progress on the goal of zero discrimination, in line with the political commitments that United Nations Member States made in the 2016 Political Declaration on Ending AIDS and in Sustainable Development Goal 3, ending AIDS as a public health threat by 2030.

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

Contact

UNAIDS Geneva
Sophie Barton-Knott
tel. +41 79 514 6896
bartonknotts@unaids.org
UNAIDS Media
tel. +41 22 791 4237
communications@unaids.org

Read the brief

Rights in a pandemic – Lockdowns, rights and lessons from HIV in the early response to COVID-19

Global Partnership for Action to Eliminate All Forms of HIV-Related Stigma and Discrimination

Press centre

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Documents

Rights in a pandemic – Lockdowns, rights and lessons from HIV in the early response to COVID-19

27 August 2020

Rights in a Pandemic outlines 10 immediate areas for action for governments towards building effective, rights-based COVID-19 responses. These include taking proactive measures to ensure that people, particularly people in vulnerable groups, can access HIV treatment and prevention services, designating and supporting essential workers, including community-led organizations, and implementing measures to prevent and address gender-based violence. The report builds on Rights in the time of COVID-19, released by UNAIDS in March 2020, which urged countries to take a human rights approach in responding to COVID-19, in line with best practices from 40 years of responding to HIV. This publication is also available in Portuguese

Press Release

As pandemic deaths pass 1 million, COVID survivors from 37 countries write to pharmaceutical bosses to demand a People's Vaccine

GENEVA, 29 September 2020—Survivors of COVID-19 from 37 countries are among almost 1,000 people who have signed an open letter to pharmaceutical industry leaders calling for a ‘people's vaccine’ and treatments that are available to all – free from patents. The letter comes on the eve of a high-level side event about the pandemic at the UN General Assembly in New York tomorrow (30 September).

The signatories include 242 COVID-19 survivors from South Africa to Finland and New Zealand to Brazil. They also include 190 people in 46 countries who have lost relatives to the virus, and 572 signatories with underlying health conditions that mean they are more likely to develop severe forms of COVID-19 and have a greater risk of dying from it.

The letter says: “Some of us have lost loved ones to this killer disease. Some of us have come close to death ourselves. Some of us are continuing to live in fear that contracting this disease would be fatal for us. We see no justification why your profit or monopolies should mean anyone else should go through this.”

It describes pharmaceutical corporations as “carrying on with business as usual - defending monopolies while refusing to share research and know-how” and calls on industry leaders to “ensure COVID-19 vaccines and treatments reach everyone who needs them by preventing monopolies, ramping up production and sharing knowledge.”

Pharmaceutical monopolies will restrict the production of effective vaccines and treatments to a small number of manufacturers, preventing the mass production that is needed to meet global demand. The letter demands that corporations immediately license vaccine technology and intellectual property rights to the WHO COVID-19 Technology Access Pool (C-TAP).

One of the signatories, Dilafruz Gafurova, 43, from Tajikistan, said: “Me and my husband got sick with this disease. We could only rely on ourselves as hospitals were full … It was really difficult to get the right medicines. I am a mother of four children … I was afraid to leave them alone in this world if something bad could happen with me … The reason I am signing this letter is to help others to get [a] vaccine. Not all the people around the world can get this vaccine, as they simply cannot afford it. They hardly [have enough to meet] their daily needs.”

The letter was organised by the People's Vaccine Alliance, a global coalition of organisations and activists united under a common aim of campaigning for a people’s vaccine for COVID-19 that is based on shared knowledge and is freely available to everyone everywhere.

Tomorrow at the UN General Assembly, Bill Gates and UK Prime Minister Boris Johnson will be among other high-profile figures discussing vaccine access. So far rich nations have failed to exert pressure on pharmaceutical corporations to share technology to maximise the supply of successful vaccines and treatments worldwide.

Heidi Chow from Global Justice Now, a member of the People’s Vaccine Alliance said: “Pharmaceutical companies need to pay attention to the demands of people from around the world who have experienced the fear and devastation of COVID-19. The industry cannot block its ears to these voices but should respond immediately by ending their monopolies and commit to sharing manufacturing know-how. These actions are crucial to expand vaccine supplies so that all countries can affordably access effective vaccines.”

Winnie Byanyima, Executive Director of UNAIDS, said: "With AIDS we saw that when treatments were found the wealthier people in wealthier countries got back to health, while millions of people in developing countries were left to die. We must not repeat the same mistake when a vaccine for COVID-19 is found. The right to health is a human right—it should not depend on the money in your pocket or the colour of your skin to be vaccinated against this deadly virus. A vaccine should be a global public good and free of charge for all."


A COVID-19 VACCINE FOR ALL


The Alliance is also calling on governments to make public funding for research and development of COVID-19 diagnostics, vaccines and treatments conditional on pharmaceutical companies sharing their knowledge and technology free from patents. When an effective vaccine is available, the Alliance demands that doses are fairly distributed with priority given to health workers and other at-risk groups in all countries.

Notes to editors:

Read the full text of the letter

The high-level side events, titled Accelerating the end of the COVID-19 pandemic: taking new solutions to scale and making them equitably accessible, to save lives, protect health systems and restart the global economy, will take place on 30 September at the 75th session of the UN General Assembly in New York. Among the participants are the UN Secretary General, WHO Director General, leaders of a range of countries including the UK and South Africa and UNAIDS Executive Director Winnie Byanyima.

The open letter has been signed by 941 people. They include 242 COVID-19 survivors from the following 37 countries: Australia, Azerbaijan, Bangladesh, Belgium, Brazil, Burundi, Canada, Denmark, Finland, France, Germany, India, Ireland, Italy, Japan, Kenya, Lebanon, Morocco, Netherlands, New Zealand, Nicaragua, Pakistan, Philippines, Poland, Portugal, Republic of North Macedonia, Russia, Senegal, Slovenia, South Africa, Spain

Sweden, Tajikistan, Uganda, UK, USA and Zambia. Some people fell into more than one category and a list of the signatories is available on request. The letter has been sent to the pharmaceutical companies behind the 11 vaccine candidates that are currently in Phase 3 trials.

People’s Vaccine Alliance is a coalition of organisations and activists united under a common aim of campaigning for a ‘people’s vaccine’ for COVID-19 that is based on shared knowledge and is freely available to everyone everywhere. A global common good. It is coordinated by Oxfam and UNAIDS and its members include Frontline AIDS, Global Justice Now, Nizami Ganjavi International Center, STOPAIDS, Wemos and the Yunus Centre. More than 140 world leaders, former leaders and economists have called on governments to unite behind a people’s vaccine against COVID-19.

Earlier this month, an analysis by Oxfam revealed that a small group of wealthy nations representing just 13 percent of the world’s population have already bought up more than half (51 percent) of the future doses of leading COVID-19 vaccine candidates. 

Press Release

COVID-19 pandemic: countries urged to take stronger action to stop spread of harmful information

NEW YORK, 23 September 2020—The World Health Organization (WHO) together with the UN, specialised agencies and partners today called on countries to develop and implement action plans to promote the timely dissemination of science-based information and prevent the spread of false information while respecting freedom of expression. 

WHO, the UN, UNICEF, UNAIDS, the UN Development Programme (UNDP), UNESCO, the International Telecommunication Union (ITU), the UN Global Pulse initiative and the International Federation of the Red Cross and Red Crescent Societies  (IFRC), together with the governments of Indonesia, Thailand and Uruguay held a webinar on the margins of the 75th UN General Assembly to draw attention to the harm being done by the spread of misinformation and disinformation, the latter being deliberate misinformation to advance an agenda.

“As soon as the virus spread across the globe, inaccurate and even dangerous messages proliferated wildly over social media, leaving people confused, misled and ill-advised”, said UN Secretary-General António Guterres. ”Our initiative, called “Verified”, is fighting misinformation with truth. We work with media partners, individuals, influencers and social media platforms to spread content that promotes science, offers solutions and inspires solidarity. This will be especially critical as we work to build public confidence in the safety and efficacy of future COVID-19 vaccines. We need a ‘people’s vaccine’ that is affordable and available to all.”

“Misinformation and disinformation put health and lives at risk, and undermine trust in science, in institutions and in health systems,” said WHO Director-General Dr Tedros Adhanom Ghebreyesus. “To fight the pandemic we need trust and solidarity and when there is mistrust, there is much less solidarity. False information is hindering the response to the pandemic so we must join forces to fight it and to promote science-based public health advice. The same principles that apply to responding to COVID-19 apply to managing the infodemic. We need to prevent, detect and respond to it, together and in solidarity.” 

“On top of the immediate impact on pandemic responses, disinformation is undermining public trust in democratic processes and institutions and exacerbating social divides”, said UNDP Administrator Achim Steiner. “It’s one of the most concerning governance challenges of our time. UNDP is actively collaborating with Member States, fellow UN agencies, and other partners to find holistic responses which respect human rights.”

“Misinformation is one of the fastest growing challenges facing children today,” said Henrietta Fore, UNICEF Executive Director. “It takes advantage of the cracks in trust in societies and institutions and deepens them further, undermines confidence in science and medicine, and divides communities. In its most pernicious forms, such as when it convinces parents not to vaccinate their children, it can even be fatal. Because misinformation is more a symptom than a sickness, countering it requires more than just providing truth. It also requires trust between leaders, communities and individuals.” 

“We can beat COVID-19 only with facts, science and community solidarity,” said Executive Director, Winnie Byanyima. “Misinformation is perpetuating stigma and discrimination and must not come in the way of ensuring that human rights are protected and people at risk and those marginalized have access to health and social protection services.”

“Since the start of the pandemic, UNESCO has mobilised its international networks of media partners, journalists, fact-checkers, community radio stations, and experts, to give citizens the means to fight against false information and rumours — phenomena that have been exacerbated by the pandemic,” said Audrey Azoulay, the UNESCO Director-General. ”Collective mobilisation to promote quality and reliable information, while strictly ensuring respect for freedom of expression, is essential. A free, independent and pluralistic press is more necessary than ever.”

“Trust is a cornerstone of our digital world,” said Houlin Zhao, Secretary-General of the International Telecommunication Union. “Building on the long-standing WHO-ITU BeHe@lthy BeMobile initiative, ITU has been working with national ministries of telecommunications and health and mobile network operators since the beginning of this crisis to text people who may not have access to the internet, providing them with science- and evidence-based COVID-19 health advice directly on their mobile phones.”

WHO and partners urged countries to engage and listen to their communities as they develop their national action plans, and to empower communities to build trust and resilience against false information. 

“Engaging communities on how they perceive the disease and response is critical to building trust and ending outbreaks,” said Jagan Chapagain, IFRC Secretary General. “If our response does not reflect the communities’ concerns and perceptions, we will not be seen as relevant or trusted by affected populations, and the epidemic response risks failure.  More than ever, local responders are at the forefront of this crisis. We need to recognize the incredible role they play in understanding and acting on local knowledge and community feedback.”

The co-hosts also called on the media, social media platforms, civil society leaders and influencers to strengthen their actions to disseminate accurate information and prevent the spread of misinformation and disinformation. Access to accurate information and the free exchange of ideas online and offline are key to enabling effective and credible public health responses.

"UN Global Pulse was set up a decade ago inside the UN System to pioneer the use of real-time and predictive insights to protect vulnerable communities in times of crisis”, said Robert Kirkpatrick, Director of UN Global Pulse, the United Nations Secretary-General’s initiative on big data and artificial intelligence (AI). “During this pandemic we have seen a tremendous increase in requests for advanced analytics from across the UN System and Member States. We will continue to work with WHO and other partners to help identify and combat mis- and disinformation.” 

Note to Editors

WHO defines an infodemic as an overabundance of information, both online and offline. It includes accurate information as well as mis- and disinformation. 

In May 2020, WHO Member States passed Resolution WHA73.1 on the COVID-19 response at the World Health Assembly. The Resolution recognises that managing the infodemic is a critical part of controlling the COVID-19 pandemic: it calls on Member States to provide reliable COVID-19 content, take measures to counter mis- and disinformation and leverage digital technologies across the response. The Resolution also called on international organisations to address mis- and disinformation in the digital sphere, work to prevent harmful cyber activities undermining the health response and support the provision of science-based data to the public. 

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

Contact

UNAIDS
Sophie Barton-Knott
tel. +41 79 514 68 96
bartonknotts@unaids.org
WHO
Carla Drysdale
cdrysdale@who.int

Joint statement

Feature Story

How the Jamaica transgender community is surviving COVID-19

24 September 2020

Rose Clark (not her real name) is a 21-year-old transgender woman living in Kingston, Jamaica. Through sex work she’d been able to afford the basics—food, clothes and a small apartment.

Another transgender woman, Carla John (not her real name), worked in a hotel bar on Jamaica’s north coast. It allowed her to live independently of an unsupportive family since she was 19 years old.

COVID-19 upturned their lives. A night-time curfew made it impossible for Ms Clark to work. She was evicted in May. Ms John’s employer shut down operations in April and sent staff home. Since then she’s been living with hostile relatives.

These two are not alone. The Equality Group—a coalition of civil society organizations serving lesbian, gay, bisexual and transgender (LGBT) people in Jamaica—conducted an online survey to gauge the impact of COVID-19 on the LGBT community. It found that a quarter of respondents had lost their job, while three in 10 were unable to pay for food, rent or utilities.

“There’s been a sharp increase in homelessness,” reported Renae Green, Associate Director of Policy and Advocacy at Transwave. “The community has experienced major loss of income and people are unable to pay for housing, food and other basic amenities.”

The transgender community as a whole has several layers of vulnerability—low access to education and employment, small or non-existent family safety nets and high vulnerability to gender-based violence. These are the underlying causes for a 2018 study finding that half (51%) of transgender women in Jamaica were living with HIV. 

Transwave has collaborated with WE-Change, JFLAG and Equality Youth to run a COVID-19 hotline. It also provided care packages, including non-perishable food items and toiletries, to people in need. Already more than 100 transgender people have benefitted.

Critically, a Trans Emergency Fund was established to raise money to cover or subsidize applicants’ rent for short periods. Both individuals and organizations have made donations. And Transwave manages a virtual support group, providing much needed emotional solidarity during this trying time.

If anything, COVID-19 has intensified Transwave’s ongoing efforts to shine a light on the hidden issues facing one of Jamaica’s most marginalized groups.

“We are not included in decision-making processes,” Ms Green said plainly. “Decision-makers barely talk about us. We keep having to say “remember trans people”.”

UNAIDS Jamaica provided financial support that was used to ensure that Transwave had personal protective equipment and to supplement care package supplies. The office has also made certain that transgender issues are included in the coordinated HIV civil society response to COVID-19.

This fresh pandemic response has unfolded alongside Transwave’s 2020 strategic planning work, which has been supported by UNAIDS and the United Nations Population Fund.

“There is an urgent advocacy agenda for transgender people that includes all the social determinants to health and human rights,” said Manoela Manova, the UNAIDS Country Director for Jamaica.

“COVID-19 has laid bare just how vulnerable people are when they do not have equitable access to opportunities, justice and health care,” added UNAIDS Jamaica’s Community Mobilization Adviser, Ruben Pages. “That’s why it’s so important and inspiring that Transwave has continued its core work through all this.”

Feature Story

“Physical distance, not social distance”: supporting Jamaican women living with HIV during COVID-19

21 September 2020

The socioeconomic impact of COVID-19 is clear. People have lost incomes. Children are out of school. Food and housing insecurity are on the rise. And there has been an increase in domestic violence.

But for many women living with HIV in Jamaica, there are added layers of stress. According to the Jamaica Community of Positive Women (JCW+), many of their clients reported having received only one month’s supply of HIV treatment, although they were hoping for the recommended three months. New screening protocols at certain clinics have made some people feel exposed to unfamiliar health-care staff and unexpected disclosure of their HIV status. A few women report not having been able to access contraception on time.

According to the Coordinator of JCW+, Olive Edwards, the pressure of dealing with both pandemics has had a huge mental health impact on women living with HIV.

“Uncertainty is taking a toll,” she said. “It has disrupted life and people are worried. Some are struggling to cope with these feelings of constant uncertainty.

JCW+’s main objective for 2020 was to provide community support for women living with HIV in order to improve treatment adherence and reach viral suppression. When COVID-19 hit in March, they were presented with an added challenge. How would they address women’s new needs?

UNAIDS Jamaica’s COVID-19 emergency response contributed hygiene supplies to care packages. JCW+ used these as an entry point for connecting with clients. Women were provided with soap, household disinfectant and bleach and were shown during peer-share sessions how to use those products, along with masks made by a community mobilizer.

From there, the organization linked women to the Positive Health and Dignity Movement and treatment adherence projects. JCW+ participants prepared personal development plans with a focus on treatment adherence, education, job training and certification goals, where necessary. They keep in contact with the care teams in order to ensure access to optimal health and social support services. They have conversations to keep hope alive and send text reminders to reinforce key health and well-being messages.

“Community needs to be engaged at this time. Managing COVID-19 is about physical distance, not social distance. We felt women needed to meet and talk,” Ms Edwards said. They’ve limited support group sessions to eight people at a time.

According to the UNAIDS Country Director for Jamaica, Manoela Manova, the AIDS response must now strike a delicate balance.

“We must address standing health-care and human rights priorities as well as the immediate physical needs triggered by the COVID-19 response,” Ms Manova said.

Going forward, Ms Edwards says JCW+’s advocacy priorities are ensuring that the HIV response is not neglected because of COVID-19 and ensuring the most marginalized people are caught by state social safety nets. 

Ms Edwards asked that UNAIDS continue to “feel the pulse of what is taking place” and support community outreach strategies that are relevant to Jamaican culture.

Feature Story

COVID-19 brings Jamaican people living with HIV closer together

18 September 2020

COVID-19 has brought new challenges for many people living with HIV in Jamaica:

“I am concerned about going to the clinic too often, but I can only get one month’s supply of antiretrovirals at a time.”

“The place I normally go to meet with my community facilitator is no longer available. Now how do I access care?”

“I haven’t been taking my medicines the way I should. Am I going to catch COVID-19?”

For Dane Lewis, Programme Manager of the Jamaica Network of Seropositives (JN+), addressing the community’s anxieties has cleared a path to more connection and support.

“JN+ started doing a survey almost immediately. We reached about 70% of our membership. This was an opportunity to reconnect to our base, to see what the needs were. It helped us to re-establish contact and brought our community closer together,” he said. “Ultimately we think this pandemic will help us bring and keep more people in care.”

There are an estimated 32 000 people living with HIV on the Caribbean island. In 2019, just 44% of them were on antiretroviral therapy, while roughly one third (35%) were virally suppressed. While most people access treatment through the public health-care sector, community organizations like JN+ play a key role in supporting people to start antiretroviral therapy and stay the course.

They’ve also been a critical partner during COVID-19. Despite having a multimonth dispensing policy, the Jamaica Government has authorized just monthly dispensing in order to avoid stock-outs.

“Community organizations like JN+ have allayed fears and followed-up so that people continue their treatment,” said UNAIDS Jamaica Country Director, Manoela Manova. “That’s why it’s important that civil society is at the decision-making table and that community workers are classified as essential workers during COVID-19.”

For the organization’s retention navigators, not much has changed. They continue to reach out to clients via the telephone to check in on whether they are taking their medicines as they should. There has been more of a shift for community facilitators, who were traditionally connected to treatment sites. Face-to-face support has largely given way to telephone calls and video chats. Twice a month, online sessions are used to address wide-ranging community concerns. JN+ team members are on hand to do things like drop off care packages or connect clients affected by community lockdowns to new treatment sites. The organization has also helped people register to receive financial support from the state.

“There has been a lot of anxiety about being able to access basic food and sanitation items. People lost jobs because of the pandemic, so anxieties turned into real needs for many. We had to stop doing in-person activities, such as our support groups, and refocus our energies on coordinating the peers to provide care packages. The support and network we offer have been important,” Mr Lewis explained.

The JN+ COVID-19 experience underlines the key role that community organizations play in helping clients to access resources.

UNAIDS Jamaica has been working to support the response at the practical and tactical levels. It provided hygiene products to be widely distributed and also facilitated weekly collaboration between civil society organizations responding to the needs of people living with HIV during COVID-19.

“Community organizations save lives,” said Ruben Pages, UNAIDS Jamaica’s Community Mobilization Adviser. “The JN+ experience shows why it is important to support community organizations that are able to reach marginalized people with unique support that those in need are not able to find anywhere else.” 

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