PLHIV

Press Statement

UNAIDS welcomes the recent decision of the government of the Republic of Kazakhstan to remove the remaining legal barriers for people living with HIV to adopt children

The 2020 Kazakhstan Code on Public Health and Health Care System guaranteed the right of people living with HIV to adopt children. However, certain bylaw regulations remained that created barriers for people living with HIV to enjoy the right to adopt children. On 1 December 2022, the day the world commemorated World AIDS Day, the Ministry of Health removed this remaining barrier.

UNADS welcomes this progressive action as reaffirmation of Kazakhstan’s continuing commitment to eliminate stigma and discrimination against people living with and affected by HIV.

UNAIDS Country Director in Kazakhstan Gabriela IONASCU said, “Living with HIV is no longer seen as an impediment to adopting and raising children. By excluding HIV from the list of diseases that prevent people from adopting children or becoming guardians or foster parents, Kazakhstan is taking bold steps to advance in the right direction: ensuring human rights for all, including for people living with HIV.”

It furthermore underlines Kazakhstan’s commitment to guaranteeing human rights for all leaving no one behind, including activities under the framework of the Global Partnership for Action to Eliminate All Forms of HIV-Related Stigma and Discrimination which the Republic of Kazakhstan joined in 2021 among 30 other pilot countries.

“Similar changes in legislation were made in other eastern European and central Asian countries, including the Kyrgyz Republic, the Republic of Moldova, the Russian Federation, and Ukraine. UNAIDS reaffirms its commitment to provide technical assistance and expert support to advance progress to end AIDS in Kazakhstan and support all people living with and affected by HIV across the region,” said Eamonn Murphy, UNAIDS Deputy Executive Director and Regional Director for Eastern Europe and Central Asia

Note: The decree of the Ministry of Health of The Republic of Kazakhstan

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

Feature Story

Indonesia: Helping one family at a time through Lentera Anak Pelangi’s One Child One life program

10 October 2022

Estimates indicate that in Indonesia in 2021, only 25% of the 19,000 children living with HIV received life-saving antiretroviral therapy and 2,400 children died from AIDS-related causes.

Despite global scientific breakthroughs providing more effective treatment for adults and children, for many children living with HIV in Indonesia access to antiretroviral therapy remains elusive.  Exacerbating the situation is the entrenched societal and gender inequalities that present barriers to women, adolescents and children to access quality prevention and care services.  

With many competing priorities, national and local commitment of resources to scale-up efforts to eliminate vertical transmission of HIV and increase ARV coverage among children living with HIV remain limited. This has resulted in insufficient investment in community-based services for women, adolescents and children living with HIV.

To reduce AIDS-related deaths among children, and ensure children and adolescents living with HIV have access to high quality comprehensive care and support, Indonesia must expand community-based services and community-led programmes tailored to the needs of these very vulnerable yet often left-out groups.

Lentara Anak Pelangi (LAP), an organization that provides HIV services, including psychosocial support, for children and adolescents living with HIV in Jakarta has seen some successes through their One Child One Life program.

“We want these adolescents to be the next generation of positive leaders and influencers who inspire other teens living with HIV” said Prof. Irwanto, founder of Lentera Anak Pelangi.

The One Child One Life program provides disclosure and post-disclosure support, mental health assessment and care as well as education.

“Lentera Anak Pelangi has supported my daughter since she was very young. LAP’s in-person and online activities have been very helpful for her. Through Sekolah LAP, my daughter has started to learn how to build her self-confidence and open her mind to learn more things. I also learned the meaning of this illness and find friends facing the same struggle and fight to continue to be healthy,” Explained the mother of one LAP beneficiary.

“My son and I have been greatly helped by LAP’s education support. During the pandemic, we often received sembako (staple foods). My son loves to be part of LAP because he gets to meets other teens who share similar circumstances. We also receive information on how to provide care for our family,” another mother said.

Through the One Child One Life program, children living with HIV have been supported to suppress their HIV viral load, return to school and participate in youth support groups.  LAP also supports children with special needs and supplemental nutritional support when required. However, their coverage remains small due to funding and human resource constraints.

“Science has made it possible to diagnose and treat HIV. We have come a really long way in 40 years. In Indonesia, we must eliminate vertical transmission of HIV and ensure that all children living with HIV access life-saving antiretroviral therapy and quality care including psychosocial support when needed.” said Krittayawan Boonto, the UNAIDS Country Director for Indonesia.”

UNAIDS Indonesia together with Lentera Anak Pelangi and other implementing partners continue to call for optimized investments in community-based services and community-led programmes for women, adolescents and children living with HIV. 

Feature Story

People living with HIV speak loudly and clearly at World Council of Churches Assembly

07 September 2022

The 11th Assembly of the World Council of Churches (WCC) is meeting in Karlsruhe, Germany, from August 31 to September 8, 2022. The WCC brings together delegates and participants from 345 denominations from around the world, representing more than 500 million Christians.

Faith leaders and activists living with HIV expressed huge concerns for the future of the HIV response. Young people continue to be exposed to HIV; women are experiencing violence in all forms. Governments are moving away from HIV and many ecumenical organizations too.

What we need is a continued engagement with people with HIV and those at risk.

My country depends on international aid, what if we stop having that support?”, said one faith leader.

Another said, “Adolescents and children are not staying on medication, they are getting sick and some of them are dying”. Time is running out for the HIV response, we have to help people to live and stay safe and healthy.

People with HIV in the WCC Assembly are speakers and are leading plenaries, workshops and ecumenical conversations. They are bringing attention to the role of the church and the ecumenical movement to continue responding to the HIV epidemic; not only in relation to HIV stigma, but also in advocacy for a sustainable response to HIV, gender justice, human sexuality and the work on HIV related intersectionality and inequalities. This is a matter of justice, love and reconciliation.

The third thematic plenary Affirming the wholeness of life, included input from Canon Gideon Byamugisha from Uganda. He spoke about the realities of young people exposed to HIV and the consequences of unequal access to COVID-19 vaccines, because of unfair patent systems. He shared his experience of receiving support from Bishop Samuel Ssekkadde in 1998 who was leading the Anglican Church in Uganda and how that support saved his life when he was about to die without access to HIV medications. For many people with HIV, that continues to be a reality today.

Canon Gideon Byamugisha is one of the founders of INERELA+ (International Network of Religious Leaders Openly Living or Affected by HIV). He asked the Assembly participants to adopt the targets of the Global AIDS Strategy: the 95-95-95 strategy, which means that 95% of people living with HIV should be tested, 95% of those, should be on treatment and 95% of those, should have undetectable viral load, meaning that they can no longer transmit HIV and can stay healthy.

On September 2, five faith leaders openly living with HIV shared local experiences of churches responding to HIV stigma. In Argentina, some churches are taking care of transgender, indigenous women living with HIV; in Ghana, other churches are promoting the message of undetectable HIV = untransmitable HIV. In the United States, faith based organizations are providing affordable housing for people living with HIV who are transitioning out from rehabilitation or from the penitentiary system. Churches in Kenya are caring for children orphaned by HIV and they provide care and accompaniment for women who experienced sexual violence.

The workshop presented the results of a six-month case study recently completed by the WCC and Emory University. “We emphasize stigma because we know that it is a major driver of the HIV epidemic,” said Dr. David Barstow, one of the workshop organizers.  “And we emphasize the role of local churches because of the influence they have on their members and on the rest of society.  Local churches, indeed local communities of all faith traditions, are key to eliminating stigma and are therefore key to ending the epidemic.”

Some of the preliminary findings of the study refer to the role of people living with HIV who have a deeper understanding of stigma because of their lived experience.  According to Professor John Blevins, who led the case study team, “…in the case study, when people living with HIV talk about stigma, they describe complexities that are often not apparent to people who do not live with HIV”

One faith leader said that “…despite my congregation’s commitment to stigma reduction, many people with HIV still feel uncomfortable disclosing our status.” The stigma was perceived as something that comes from those “on top” in the church. Another faith leader said, “Every time one of them dies, I die a little bit myself.”

The church and faith communities have much work to do in relation to HIV stigma. “We should be part of the healing hands of God to the world,” said Gracia Violeta Ross, a woman openly living with HIV, who is now leading the Ecumenical HIV & AIDS Initiatives and Advocacy in WCC. Canon Gideon Byamugisha said “…zero percent of our members should feel stigmatized. Surely, we want that going to church should be good for your health!”

Feature Story

In the Democratic Republic of Congo, Thérèse Omari maintains her commitment to ending AIDS and providing a fulfilling and harmonious life for people living with HIV

28 July 2022

"We are here, we are not giving up". These are the encouraging words of Thérèse Omari, an activist who has been involved in the fight against AIDS for more than 20 years within the Femme Plus organisation, of which she is the co-founder and National Director in the Democratic Republic of Congo.

Femme Plus, true to its motto "Positive Life", works to improve the quality of life of people living with HIV. "The objective is for our beneficiaries to live in harmony with themselves, with their environment and with their beliefs," explains Ms Omari. 

To this end, the organisation provides psychosocial support to people living with or affected by HIV through counselling, care and support services. Femme Plus also carries out numerous activities in communities to free people living with HIV from the burden of stigma. "There is still a lot to be done to change behaviours towards people living with HIV," says Ms Omari. In the Democratic Republic of Congo, HIV-related stigma is still very present, especially in community settings. "Many people living with HIV say they no longer participate in family gatherings and other events fearing discrimination. It is therefore essential that people who come to Femme Plus feel that they are considered normal people with rights and obligations," she explains. In order to raise awareness, the organisation runs workshops to provide communities with the knowledge to better support people living with HIV, without isolating them or treating them differently.

Ms Omari also deplores the persistence of stigma and discrimination in health care settings despite the numerous HIV-related trainings for health care workers. In particular, she receives testimonies from pregnant women who have tested positive for HIV in one facility and wish to give birth in another, fearing of being stigmatised and treated differently. This is problematic as it can be detrimental to the provision of appropriate care for the mother and baby.

Ending discrimination and ensuring that the rights of people living with HIV are protected is therefore one of Femmes Plus' priorities to help them assert themselves and make the right choices about their health. "We encourage people living with HIV to empower themselves, to speak up about their condition, for their own well-being," says Ms Omari. 

Ms Omari also raises other obstacles to the AIDS response. The lack of access to prevention and treatment, and the low rate of people with an undetectable viral load, are among the shortcomings of the fight against HIV in the Democratic Republic of Congo. "Not everyone has access to testing. There are still people with HIV who live in anonymity," warns Ms Omari.

To overcome this gap, Femme Plus works with community leaders to teach them how to stay healthy with HIV. Among other activities, it also engages with pregnant and breastfeeding women, providing them with the knowledge to protect their babies and thereby stop vertical transmission.

"As long as there are people who do not know their HIV status, who do not have access to treatment and who have not reached an undetectable viral load, the fight of Femme Plus will remain meaningful," insists Ms Omari.

She concludes by pointing out that the fight against AIDS in the Democratic Republic of Congo is taking place in a context where resources are limited. "The local population must be involved in psychosocial care and prevention activities to make HIV an electoral issue," she explains. While waiting for more substantial funding from the State and better traceability of funds, community-led services have a crucial role to play with people living with HIV. They are at the heart of the fight against AIDS, advocating for access to prevention and life-saving care, calling for respect for human rights and addressing the specific needs of their beneficiaries. Their support is therefore pivotal in meeting the challenges of the HIV response and ending AIDS by 2030.

Feature Story

Martine Somda, an activist committed to the fight against HIV in Burkina Faso, continues her fight to defend the rights of people living with HIV

26 July 2022

Ms Martine Somda Dakuyo was 34 years old when she was diagnosed with HIV. The news, which she describes as traumatic, suddenly shattered all the hopes and plans of this mother of four. "I suffered a lot from the fear of dying prematurely and in deplorable conditions," she says. Despite a deep sense of anger and injustice, she finally came to terms with her status and even went public in the media to encourage people living with HIV to accept themselves and get help.

Today, with her treatments controlling her viral load and keeping her healthy, Martine can look forward to a happy and productive life. She is one of the pioneers in the fight against AIDS in Burkina Faso, having fought for nearly 29 years with the NGO Responsabilité Espoir Vie Solidarité (REVS+). This association, of which she is the initiator and President of the Board of Directors, works for the prevention of HIV, the care of people exposed to the virus and the promotion of their human rights.

"The fight against AIDS in West and Central Africa remains a health emergency," says Ms Somda. Although the HIV prevalence rate is 0.7% in Burkina Faso, Ms Somda asks us about the situation of key populations, who are more exposed to the dangers of HIV, and the reasons that lead to this sad reality. In particular, she mentions the political and security context in the region, proposed laws that discriminate against key populations and the low involvement of people affected by HIV in the fight against AIDS as obstacles to effective care.

In order to protect key populations from the dangers of HIV, Martine’s ambition is to provide universal access to prevention methods, which are a crucial aspect of the fight against AIDS.

"Focusing on effective access to health and rights for people in situations of social rejection and criminalisation is the challenge for the fight against AIDS," she says.

In order to achieve universal access to prevention, care and follow-up services, Ms Somda advocates, among other things, greater involvement of people affected by HIV in the development of national AIDS strategies, better recognition of actions carried out on the ground and the elimination of social and economic inequalities that fuel the epidemic.

In addition, Martine expressed concern about conservatism and cultural, religious and traditional pressures that lead to stigma and discrimination against people living with HIV.  This discrimination manifests itself in various forms; through verbal or physical attacks, threats, harassment, arbitrary arrests, she observes. Such behaviour is dangerous and represents a major obstacle to the fight against AIDS, as it discourages people living with HIV from seeking appropriate services. There is an urgent need to stop such violence in order to create a climate where the rights of people living with HIV are respected and protected. Establishing a more inclusive discourse, free of discriminatory and erroneous prejudices, will allow for a more effective response guided by values of respect, integrity and equality.

With this in mind, in 2015 REVS+ set up workshops and training for decision-makers, religious and customary leaders, health professionals, police and the media. The aim of these activities is above all to denounce stereotypes about people living with HIV and to put an end to discrimination.

"The contribution of community services to the response to HIV is well known and proven, as they complement the services offered by the public health system," explains Ms Somda. Ensuring the continuity of their activities and allowing the greatest number of people to benefit from them, is a necessity for effectively combating AIDS in the region. The resilience of networks such as REVS+, which ensured that prevention activities and care services for people affected by HIV were maintained, was one of the reasons why the impact of the COVID-19 pandemic on people living with HIV was minimised.

Finally, to ensure the effectiveness of the fight against AIDS in the region, and more specifically in Burkina Faso, Ms Somda hopes to see more funding that is "more field-oriented, aligned with policies, strategies and in line with the needs of marginalised groups".

Through this exchange with Martine Somda, we see once again that there is still a long way to go to end AIDS in the region. However, this goal is within reach if all actors in the HIV response work together to develop multi-sectoral strategies. Implementing measures to achieve universal access to prevention services, eliminating HIV-related inequalities and stereotypes, and better managing investments are key priorities for ending AIDS by 2030.

Feature Story

A poster exhibition highlights progress and gaps in the HIV response in eastern Europe and central Asia

13 June 2022

A poster exhibition entitled YES…BUT! highlights the disparities existing in the HIV response in eastern Europe and central Asia (EECA). Some posters display important key facts and figures on the progress made as well as the current gaps hindering progress in the region. Others focus on the impact that AIDS-related stigma and discrimination has on people living with HIV in eastern Europe and central Asia.

For example, one poster highlights that while all people living with HIV are eligible to start HIV treatment immediately regardless of their CD4 count, there has been a 32% increase in AIDS-related death in the region since 2010. Another one focuses on the fact that, even though HIV self-testing and free anonymous HIV testing are available and accessible in most countries, every second an HIV diagnosis is made late—and one in three is made very late.

Tahmina Khaidarova, Director of the Tajikistan Network of Women Living with HIV is convinced that one of the reasons for widespread late diagnosis and increased number of deaths is the stigma that continues to prevent people from accessing HIV testing. “I told my story to help women who live in a vicious cycle of stigma. Stigma makes us vulnerable. We must fight. And first of all, we fight our own fears.” says Mrs Khaidarova in one of the posters.

The EECA region has the fastest-growing HIV epidemic in the world. The war in Ukraine places under huge strain the hard-won gains made in recent years in the HIV response in the countries involved and in the entire region.  

“We must keep the HIV epidemic in the region in the spotlight and support the resilience of people, community-led organizations, and countries to ensure the AIDS response succeeds,” said Eamonn Murphy, Deputy Executive Director, Regional Director for Eastern Europe and central Asia a.i. 

The posters will be shown at the UNAIDS Regional Cluster Meeting for eastern Europe and central Asia to take place in Geneva, from 14 to 17 June 2022.

Watch: Poster exhibition highlights progress and gaps in the HIV response in eastern Europe & central Asia

Watch: In Spite Of...

Feature Story

Kryvyi Rih AIDS centre continues to provide HIV services despite the war in Ukraine

25 May 2022

On 25 November 2021, the city of Kryvyi Rih, the fourth largest city in Ukraine, signed the Paris Declaration to end the AIDS epidemic in cities. The city is an important economic and industrial centre, a major transport hub and the birthplace of the Ukrainian President, Volodymyr Zelensky.

A group created by the city administration to develop and implement the Paris Declaration determined the main areas of work, which included the expansion of HIV prevention services for key populations through community organizations and the scale-up of HIV testing through family doctors, among others.

Physicians across the city were trained in HIV, while Gennady Kruglenko, the chief doctor at the Kryvyi Rih municipal AIDS centre, visited Odesa and Dnipro to learn about their experience with implementing the Paris Declaration.

“We were seriously preparing to start this work,” said Mr Kruglenko. “But the war slowed down our plans. Our region borders the areas of active military operations, but our centre continues providing full-scale HIV services, and we are not going to stop. And we have not abandoned the main goal of the Paris Declaration: ending the AIDS epidemic.”

The Kryvyi Rih AIDS centre has been operating since 1994, and today there are about 10 000 people living with HIV accessing HIV treatment from it. People can get HIV treatment from five different sites, which makes it much easier for people living in different parts of Kryvyi Rih. Kryvyi Rih is the longest city in Europe, the length of which exceeds 120 km.

The AIDS centre continues to work as a reference laboratory for several regional centres. Its modern equipment allows the performance of all necessary tests, including diagnosis confirmation, CD4 counts, viral load and others, to be performed. People living with HIV with complex cases, for example opportunistic infections, that require the attention of experienced doctors are referred to the centre.

Marina Baidachenko, an infectious diseases doctor at the AIDS centre, says that the centre currently also provides services to people who have fled the war. “There are people who move within the country, who apply for services through a network of our social workers. The system in Ukraine is such that no matter where the patient is, he or she can receive treatment through the general system,” she said.

Each doctor providing specialized HIV care in Ukraine has access to the medical records of patients in a general electronic registry, with strict confidentiality measures in place. This ensures that the records of people living with HIV who move from one region to another can be accessed in the new region, thereby allowing the maximum number of displaced patients to remain on antiretroviral therapy, despite the war.

According to Ms Baidachenko, the war is felt every minute. “Air raids are very frequent, missiles are flying,” she said. The employees of the AIDS centre must go to the first floor or basement, which have been adapted as bomb shelters, every time the air raid siren sounds.

“To issue antiretroviral therapy to a person, you need to open his or her electronic card in the computer, create an electronic prescription through the registry and send it to the warehouse where the medicines are issued. When there are 200–300 patients in the centre, it’s hard to tell them to wait until the alarm is over,” said Ms Baidachenko.

With the help of a UNAIDS emergency grant, the centre equipped additional workplaces with laptop computers, office equipment and Wi-Fi. Now prescriptions take only minutes and doctors can move to a safe place when the siren sounds and take their computers and continue to serve people.

Close cooperation with community organizations, such as the Public Health Charity Foundation of Krivyi Rih, has become even more important during the war.

“Each of our doctors has about 2000 people on antiretroviral therapy. Now with the war, there are only two doctors left. They have to give a prescription, check the tests, explain the medical aspects—they simply don’t have time for other important issues, such as psychological support,” said Mr Kruglenko.

According to Alexander Lee, the Project Manager of the Public Health Charity Foundation, the war has changed the format and scope of the organization’s work. “Many of our clients were left alone with their problems and fears because family members left Ukraine. The response required increased mobility of the organization’s employees for consultations and assistance to clients in remote areas of the city,” he said.

Social workers are also helping to connect medical facilities with people who use drugs, gay men and other men who have sex with men and members of other communities, who have become even more vulnerable.

“Therefore, in the chain of services, everyone does a small, but very “big”, thing,” Mr Kruglenko added.

Raman Khailevich, the UNAIDS Country Director for Ukraine, emphasized that UNAIDS supports the city’s efforts to continue providing all HIV services in close cooperation with civil society organizations. “Such interaction in peacetime was one of the most important components of the successful AIDS response in Kryvyi Rih, and in wartime it is the only way not to lose what has been achieved but also to continue moving towards the goal of ending AIDS, saving every life,” he said.

Press Statement

UNAIDS welcomes Chile’s public apology in landmark case of involuntary sterilization of women living with HIV

GENEVA, 27 May 2022—UNAIDS welcomes the Chilean Government’s public acknowledgement of international responsibility in the emblematic case of violations of the rights of women living with HIV who were sterilized without their consent. The President of Chile, Gabriel Boric Font, has issued a public apology as part of a settlement resulting from a case brought before the Inter-American Commission on Human Rights against the Chilean state by Francisca, a Chilean woman living with HIV who was sterilized without her consent shortly after giving birth in 2002.

“We welcome the recognition of international accountability in this emblematic case of human rights violations that women living with HIV and their reproductive autonomy have long suffered,” said Luisa Cabal, Director of the UNAIDS Regional Support Team for Latin America and the Caribbean. “It vindicates a journey of more than 10 years, both for Francisca and the organizations that accompanied her, in her quest for justice.” 

When Francisca—a young woman from a rural town in Chile—turned 20 years old, she and her partner received the happy news of the arrival of their first child. She was diagnosed with HIV in a routine prenatal test. Francisca took all appropriate measures to minimize the risk of vertical transmission of HIV and gave birth to an HIV-negative baby boy in November 2002. However, the day after the caesarean section, Francisca received the devastating news that the surgeon on duty had decided to sterilize her during delivery and without her consent. 

In 2009, the Center for Reproductive Rights and the Chilean organization Vivo Positivo took Francisca’s case to the Inter-American Commission on Human Rights. This case was part of a documentation of stories of Chilean women living with HIV who were often pressured not to become pregnant, as well as to undergo surgical sterilization. One of the documented accounts tells of another woman, identified as Daniela, who, after giving birth, was told that she could not hug or kiss her newborn child because she would transmit HIV to her baby. She said in interviews that this was how she understood what discrimination was. 

After more than a decade of international litigation and after the Inter-American Commission on Human Rights studied the case, a friendly settlement agreement was signed with the Chilean state, in which the government accepted its responsibility and committed to redress the violations and to take measures to ensure that such acts would not happen again. 

UNAIDS intervened in this case with an amicus curiae (friend of the court) brief that informed the Inter-American Commission on Human Rights on the health guidelines and human rights standards that each country must follow to respect, protect and guarantee the human rights of people living with HIV. 

“I would like to start by apologising to Francisca, who I understand is on the other side of the camera, for the serious violation of your rights and also for the denial of justice and for all the time you had to wait for this,” Mr Boric said at the opening of his speech during the official ceremony, broadcast live on social media. “How many people like you do we not know? It hurts to think that the state, which today I have the honour to represent, is responsible for these cases. I pledge to you, and to those who today represent you here in person, that while we govern, we will give the best of each one of us as authorities so that something like this will never happen again and certainly so that in cases where these atrocities have already been committed, they will be properly redressed.” 

“I would love to have been me, with my voice, my face and my body, the one who after so many years of struggle stood present to lead this act in my own name. However, making my identity known would have closed endless doors for me,” said Carmen Martinez, the Associate Director of Legal Strategies for Latin America and the Caribbean for the Center for Reproductive Rights, as she read the words shared by Francisca to the audience. “To this day, people who carry HIV are still looked down upon with contempt as if it was our decision to become infected. However, I want to believe with conviction that this will change.” 

“Finally, justice was done; through this case we call on all governments to continue to invest in the elimination of HIV discrimination in all services, including health care,” said Sara Araya, the Coordinator of Live Positive Gender. “The message is clear: the autonomy and physical integrity of women and all people living with HIV must be secured without discrimination. No more rights violations against women living with HIV.”  

HIV-related stigma and discrimination has a significant impact on the health, lives and well-being of people living with or at risk of HIV. Stigma and discrimination hinders the HIV response by limiting access to broader sexual and reproductive health and other health services. UNAIDS continues to work daily to ensure that governments invest in preventing and responding to violations linked to the forms of intersectional discrimination to which people living with HIV have been subjected.

Francisca delivered a healthy baby boy in 2002 and was then sterilized without her consent by the doctor who carried out her caesarean section, making the decision that a woman living with HIV should not be able to have children. The friendly agreement announced this week comes after more than a decade’s litigation by the woman and her legal teams.

“This settlement is a significant moment for women around the world who have been fighting for reproductive justice for decades. Coercive sterilization of women living with HIV is a violation of women’s most fundamental human rights,” said the Executive Director of UNAIDS, Winnie Byanyima. “Unfortunately, this practice is still happening in many countries and efforts to stop it and bring justice to more women must be stepped up.”

This settlement comes after years of efforts before the Inter-American Commission on Human Rights after an earlier complaint in the Chilean justice system was unsuccessful. The case was litigated by the Chilean organization Vivo Positivo and the international human rights organization Center for Reproductive Rights.

The Global AIDS Strategy 2021–2026: End Inequalities, End AIDS is based on the promotion of human rights, gender equality and dignity, free from stigma and discrimination for all people living with and affected by HIV. It is a commitment by UNAIDS to an ambitious vision to end gender inequalities and realize human rights, including the right to health, calling on all partners and stakeholders in the HIV response in all countries to transform unequal gender norms and end stigma and discrimination.

UNAIDS

The Joint United Nations Programme on HIV/AIDS (UNAIDS) leads and inspires the world to achieve its shared vision of zero new HIV infections, zero discrimination and zero AIDS-related deaths. UNAIDS unites the efforts of 11 UN organizations—UNHCR, UNICEF, WFP, UNDP, UNFPA, UNODC, UN Women, ILO, UNESCO, WHO and the World Bank—and works closely with global and national partners towards ending the AIDS epidemic by 2030 as part of the Sustainable Development Goals. Learn more at unaids.org and connect with us on Facebook, Twitter, Instagram and YouTube.

Watch

Read statement issued by UNAIDS Regional Support Team in Latin America (in Spanish)

 

Feature Story

Generating income from rag dolls in Brazil—helping women living with HIV during the COVID-19 pandemic

24 May 2022

Iranilde Pereira Fonseca and Michele Almeida are two middle-aged women who come from different parts of Brazil but share a common childhood memory: they used to collect scraps of cloth to make dresses for the few dolls they had. It was a way to revive their handmade toys since their families rarely had spare money for new ones.

But it was not until the COVID-19 pandemic that they had the opportunity to reconnect with their past and use it as a source of survival and income. They are among the 35 women who participated in the Mulher Empreendedora (Women Entrepreneur) project, a social entrepreneurship project implemented by the Movimento Nacional das Cidadãs Posithivas (MNCP) Brazilian HIV nongovernmental organization as a part of the UNAIDS Solidarity Fund. Along with Ms Fonseca and Ms Almeida, they were trained in artisanal doll techniques and in entrepreneurship, so that they could sell their products and obtain resources to address the impact of COVID-19 on their household incomes.

“I used to get scraps of cloth from my mother and loved to make clothes for the dolls I had, but I had not done any of that for many years,” remembered Ms Fonseca. “Now, with the MNCP project, I learned the process of making a doll completely from scratch. With the isolation imposed by COVID-19, it was important to be able to connect, even if only virtually, with women from various parts of Brazil and exchange ideas and experiences through this initiative.”

Of the initial group, 28 women are already selling their handmade dolls independently. The initiative was funded by the Solidarity Fund, launched in 2020 by UNAIDS to support entrepreneurship activities led by people living with HIV and key populations.

Ms Almeida agrees on the importance of connection and mutual support. “I really enjoyed meeting and interacting with the group of women participating in this project. In addition to reconnecting with my origins and my childhood, the techniques I learned helped me to develop a product that people enjoy. I sell my dolls to relatives and friends and through social networks,” she said.

The initiative emerged from the realization that the COVID-19 pandemic had a disproportionate impact on women. The pandemic has especially affected the service sector, such as hospitality, food, beauty and domestic services, for which the majority of the workforce is female. In 2020, the absence of jobs in those areas reduced the active participation of women in the workforce in Brazil to less than 45%.

“The project was extremely important for women living with HIV, as many of them were unable to access the job market, lived with an overload of domestic work, experienced situations of violence and had to deal with the interruption of specialized health services,” said Fabiana Oliveira, the MNCP Secretary of Communication and Technical Coordinator of Mulher Empreendedora.

Claudia Velasquez, the UNAIDS Country Director for Brazil, highlighted that the Solidarity Fund’s support to MNCP is in line with the strategic vision of putting people and communities at the centre of the HIV response while building sustainable income-generating mechanisms. “This approach is particularly important for the most vulnerable populations, such as these women living with HIV served by the MNCP, who have strongly felt the drop in income caused by the COVID-19 pandemic. Providing these women with their own access to financial resources and financial security ends up having a positive impact on their adherence and permanence in the HIV monitoring and treatment processes,” she said.

Ms Oliveira highlighted that Mulher Empreendedora had created an opportunity for participants to restructure and rewrite their personal stories. “Rag dolls have this power to stimulate imagination and creativity and even offer the equivalence of a real hug,” she said.

Feature Story

Key considerations to integrate HIV and mental health interventions

28 April 2022

A new publication by UNAIDS and the World Health Organization (WHO) emphasizes the importance of integrating HIV and mental health services and other interventions, including linkages to social protection services, for people living with HIV and other vulnerable populations.

Mental health conditions increase the risk of HIV infection, and people living with HIV have an increased risk of mental health conditions, which are associated with lower retention in HIV care, increased risk behaviours and lower engagement with HIV prevention.

Furthermore, despite an increasing body of evidence showing that effective methods of prevention, screening and diagnosis of, and treatments for, common mental health conditions, including depression and anxiety, exist and can be implemented in low- and middle-income countries, services for mental health, neurological and substance use conditions are often not integrated into packages of essential services and care, including for HIV.

“We know that integration of screening, diagnosis, treatment and care for mental health conditions and psychosocial support with HIV services does not need to be expensive,” said Eamonn Murphy, UNAIDS Deputy Executive Director, a.i., Programme. “The integrated approaches that are people-centred and local context-specific ensure better HIV and overall health outcomes, well-being and quality of life.”

The publication is primarily intended for national and local policy-makers, global, regional, country and local programme implementers, organizations working in and providers of health, HIV, mental health and other relevant services, civil society and community-based and community-led organizations and advocates.

Although focus is on the integration of mental health with HIV services and other interventions, the considerations in the publication may be relevant to other services, including for HIV comorbidities such as tuberculosis, viral hepatitis and sexually transmitted infections.

“Our publication successfully brings together tools, best practices, case studies and guidelines that can help countries and facilitate the integration of interventions and services to address the interlinked public health challenges of mental health and HIV, all while improving access to care for persons who are the most vulnerable, such as adolescents and key populations,” said Meg Doherty, Director, Global HIV, Hepatitis and Sexually Transmitted Infections Programmes, WHO.

“With this joint UNAIDS/WHO publication, we hope we can collectively support countries, service providers and other practitioners, policy-makers, programme implementers and communities in their efforts to address HIV, mental health, neurological and substance use conditions for affected individuals in an integrated and impactful way,”  said Devora Kestel, Director, Mental Health and Substance Use, WHO.

Integration of mental health and psychosocial support with HIV services and interventions, including those led by communities, is one of the key priority actions included in the Global AIDS Strategy 2021–2026: End Inequalities, End AIDS and the 2021 United Nations Political Declaration on HIV and AIDS: Ending Inequalities and Getting on Track to End AIDS by 2030. Both documents call for addressing the interlinked issues of HIV and mental health through integrated services by investing in robust, resilient, equitable and publicly funded systems for health and social protection, by reversing health and social inequalities and by ending stigma and discrimination.

The new publication stresses that the AIDS epidemic cannot end without addressing the mental health of people living with, at risk of or affected by HIV, ensuring equitable access to HIV services for people with mental health issues and conditions and achieving universal health coverage.

Integration of mental health and HIV interventions — Key considerations

Subscribe to People living with HIV